In the town of El Dorado, Kansas, an 11 year old boy named Peyton Madden was diagnosed with a rare genetic disease called xeroderma pigmentosum when he was 3 years old. This rare condition only affects 250 people in the U.S. Peyton’s skin is unable to repair itself after being exposed to sunlight. Due to this, he is unable to have a normal childhood playing outside with his friends. He must wear protective clothing that must cover every inch of his skin. With a meter that can gauge specific levels, Peyton has a 30 minute window daily that he can go outside without any protective clothing.
The whole community gathered together and turned night into day partnering with NORD (National Organization for Rare Disorders). Beginning at 9pm the whole town went outside and surprised Peyton as he rode through with a huge smile. The community pool opened and he was able to go swimming with his friends, ride his bike, shoot nerf guns, BBQ and party.
“I feel loved and appreciated” “I am a superhero” – Peyton Madden
This is what our Helping Hands is for! A whole town, community, coming together for one boy. Going all out to show him that he is not forgotten, he is always in their thoughts and gave him a day he will remember for the rest of his life!
Remember, whenever you are out there in the world and hear positive news and good gossip, Don’t Stop The Talk!